https://cyber.harvard.edu/projectvrm/history/VRM_and_Healthcare_Session?feed=atom 2026-09-30T22:50:06Z Revision history for this page on the wiki MediaWiki 1.43.6 https://cyber.harvard.edu/projectvrm/?title=VRM_and_Healthcare_Session&diff=3675&oldid=prev 2009-10-14T17:09:01Z

<p>New page: == Workshop Session Notes == Healthcare and Give me my damn data Adrian Gropper, Dean Landsman, Charles Andres, Robin , Bob Wayland, Robin Lubbock Do we want VRM to have an intermediate ...</p> <p><b>New page</b></p><div>== Workshop Session Notes ==<br /> Healthcare and Give me my damn data<br /> <br /> Adrian Gropper, Dean Landsman, Charles Andres, Robin , Bob Wayland, Robin Lubbock<br /> <br /> Do we want VRM to have an intermediate victory (feds, service provider, )<br /> options:<br /> A. Give me my damn data<br /> B. What does it legally or socially mean (privacy, TOS, laws) to say GMMDD<br /> <br /> <br /> VRM Aggregator<br /> Identity Management (who&#039;s authorize)<br /> Protocols (how are you going to take the data and move it?)<br /> Security<br /> Financial incentives (sponsorship)<br /> Certification<br /> <br /> Rel button came and went<br /> Privacy importance<br /> Collaboration or open networking?<br /> <br /> Twitter (closed API)<br /> Identica (open API)<br /> <br /> <br /> Closed: (proprietary, limited subscribers)<br /> <br /> Point: if the structure existed, VRM would emerge as a bi-product<br /> <br /> maybe generate the data first and VRM emerges<br /> <br /> VRM is context sensitive. One of the reasons it is difficult to describe what is and is not<br /> <br /> 80/20 rule works against the interest of people (ref: healthcare) -- 20% spend all the money.<br /> <br /> What is the data?<br /> Who owns it?<br /> 2 defs:<br /> - give me data that you would share with anyone (partner = me)<br /> - give me everything and after that I might tell you to delete all information. In other words, it&#039;s up to me to decide what information you can keep regardless of whether it&#039;s erroneous or not. There&#039;s no reason for you to keep my information going forward once I have a copy except as required by law to protect yourself) (but doctors are required by law to hold on to everything, but you can limit access going forward (outside a court order).<br /> <br /> laws of data access in medical<br /> <br /> RE: Experian -- law says you have to provide credit reports to users<br /> Give it to me in a convenient form.<br /> <br /> Re: for patient, proactively share it with whom I please<br /> now: sharing data within medical community is free, outside, there is often a cost.<br /> <br /> Electronic exchange<br /> accept my electronic identity<br /> don&#039;t have to explain why<br /> <br /> ID (name) backed by trusted IdProvider<br /> where to send the data (and what data to send)<br /> format follows standard<br /> <br /> Eprescribing: removes the patient as an intermediary choosing their pharmacy.<br /> I want it sent to CVS.... etc. restricts where the prescription is sent.<br /> no comparison shopping or</div>

Khopper